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From: Colleen Donovan on 12 Jul 2010 10:01 Please help families fight this terrible disease and provide their children with the lives that they deserve to live. JacobÂ’s Cure is a non-profit organization who is dedicated to finding a treatment and ultimately a cure for the rare Canavan disease. Canavan disease is a fatal genetic neurological disorder that affects children at birth, one where the child becomes trapped inside their own bodies. Since its inception in September 2000, JacobÂ’s Cure allocates monies raised to research in gene-therapy, stem cell transplantation, pharmacological approaches and basic science in understanding Canavan disease. Their efforts to date have resulted in successful gene-therapy trials and pharmaceutical interventions that have, in most cases, stopped the progression of this quickly deteriorating disorder in children afflicted with Canavan disease worldwide.In addition, JacobÂ’s Cure is responsible for creating/ funding the Canavan Research lab at UMDNJ/SOM at the direction of Dr. Paola Leone. The efforts at the CR lab focus solely on research and intervention that will save the children dying of Canavan today. They are currently participating in the Chase Community Giving. There is only one day left to vote and we need your support in receiving funds so that Jacob's Cure can work further towards finding a cure to Canavan disease. Please vote today for Jacob's Cure http://apps.facebook.com/chasecommunitygiving/ Thank you so much for your support and please spread the word, this is an important and amazing cause.
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