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From: Jan Drew on 17 May 2010 22:26
Krystal's story (Australia) as told by her mother Alison (As this
posted, Krystal is in hospital after she fainted again today after
months of being OK)
May 14, 2010 by Gertrude Green
In November 2008, my 17 year old daughter Krystal passed out at home
first time ever (only for a matter of seconds). After a trip to the
Emergency Department we were told that this happens to a lot of
girls and it wasn't anything unusual. By January 2009, Krystal was
out nearly everyday and I was having to pick her up from school (on
she still went) by lunch time.
We were sent to a cardiologist in Wollongong who sent us to his
the Royal Prince Alfred (RPA) hospital in Sydney. After having many
monitors attached and a EPS (Electrophysiology Study of the heart )
Echo scans and many days' stays in Cardiology wards we were told that
was nothing wrong with her heart. We then went through the same
the Neurology side of things and were given the all clear, although a
specialist at Wollongong hospital still believes it may be fits coming
the centre of her brain that weren't picked up while others think that
could still be her heart . nobody knows.
By Feb/March Krystal was passing out everyday; sometimes twice (the
time she was unconscious was half an hour). She was bedridden, if we
to take her out she had to be in a wheelchair but even that was to
her. Obviously, she had to leave school (year 11) and her part time
Bakers Delight that she had held from the time she turned 14.
On Tuesday 23 February 2010 we saw yet another specialist at the RPA
believes Krystal may have a Post Viral Disorder. When Krystal
passing the Cervical Cancer Vaccine and the fact that this all
during the vaccinations, the doctor agreed that its very likely
had some sort of reaction to them. I could not believe it. After all
time this is the first time that somebody has taken the Gardasil
on board and seen them as a link to what's been happening to our
When we first asked our GP if there could be a connection he dismissed
quickly that I felt silly for asking.
Some of Krystal's symptoms included: Passing out, Headaches/
Nausea, Poor circulation, Light intolerance, Feelings of hot and
blurred vision (usually with the headaches), Irregular heart beat and
general physical weakness. All of this in a bright, healthy,
social, happy teenage girl with no prior illness!
As for our home life we quickly got to a stage where we realised that
to dangerous for Krystal to walk anywhere by herself and somebody had
with her at all times she was on her feet for fear of a head injury as
had no warning when she passed out. So I gave up my full time work .We
this decision after a few very frightening experiences. The first one
when she passed out in the bathroom and hit her head on the back of
(thankfully not the edge of the bath or vanity) and I couldn't get in
bathroom as her body was blocking the door. Another time Krystal
in the kitchen and I was in my bedroom so I hadn't actually seen her
(although I heard it), but I hadn't seen if she had hit the corner of
bench and when I got to her, her eyes were open but she was
(for around 10 minutes ) and had a very weak pulse..I actually thought
going to lose her. Obviously that involved two more ambulance trips.
After that if Krystal needed the toilet or a bath (she has passed out
bath ), I took her. Even just to go from one room to the next either
or my husband walked with her. We took our phones to bed in case she
the bathroom at night and I often got up to check on her. We also had
laid just in case to make a softer landing than the polished
Stairs were out as the exertion was to much so far too dangerous .
didn't see downstairs at home for 9 months (our main living area and
door are upstairs) and we all had a big laugh at her first time back
because it was like seeing it for the first time!
Luckily, Krystal is an extremely positive, happy and intelligent
who has kept the belief that she WILL get better and this is only a
in her life. I think she had to believe that or else she would have
apart. Even during the worst time she tried to learn Italian and
keep her mind active. Since she has been feeling better for the last
months (she still has bad days but also has really good periods), she
hit the ground running with her studies and her wonderful boss and
Bakers Delight have welcomed her back on a few short shifts to see how
goes. They watch her very closely.
I cannot change the fact that Krissy did get the Gardasil injections
next best thing is to:
a) Get Gardasil off the market;
b) Inform as many people as possible of the potential side effects so
can make more informed and educated decisions than we did .
I cannot begin to explain the toll this has taken on Krystal's life
family and I would love to be in touch with anyone who has
similar problems to learn more or help someone else if possible.
Posted in Uncategorized | Leave a Comment ï¿½
Krystal's Story (Australia)
May 14, 2010 by Gertrude Green
On 27th March, 2008, I received my first cervical cancer vaccination
The second vaccination was on 5th June 08 and the third on 19th Nov
November 2008, I passed out for the first time.
My mother, who thought it best to go to the hospital just to be safe,
her mind eased when we were told it was probably just low blood
Then, in January 2009, I passed out for approximately 10-15 seconds
school. I was sent home, and we again went to the hospital, just to be
by a doctor that "some girls just pass out".
When it started happening for a third time, and then a fourth and so
obviously we started worrying. We went to our GP and he recommended
wore a halter monitor for 24hours which showed I had an irregular
As all this came on, I started getting bad headaches and migraines,
have never in my life had. I would feel sick and queasy in the
throwing up, daily. The colour from my whole body was literally
was as white as a ghost.
By now, this was occurring on a daily basis, so we were referred to a
heart specialist in Wollongong. He recommended that I wear another
monitor, have a CAT scan, and an EEG neurological test. I received
three, with the CAT scan, and EEG neurological test coming out clear.
I received the same results with the halter monitor as I did with the
one; I was having palpitations, my pulse would start racing highly all
sudden, and an irregular heartbeat was recorded. The specialist in
Wollongong, believed I had a case of Vaso Vagal, but decided to send
us to a
more qualified heart specialist in Sydney.
The specialist in Sydney, believed I had an irregular heartbeat, which
shown even whilst sleeping. My heart rate would increase dramatically,
the slightest changes. If I was sitting down, my pulse would be
around 70-85beats, then when I stood up, the monitor recorded that my
increased to 180beats. When I was in hospital, if I would stand up to
around the corridor, my monitor would constantly beep, because my
had increased so dramatically. The heart specialist recommended I have
mini operation on my heart (called an EPS) to determine whether
drastic needed to be done.
After the operation it was determined that there was nothing wrong
heart. When I was coming-to, from the anaesthetic, I started having
looked like a seizure, only when the neurologist came to help, he said
wasn't a normal seizure. I hadn't wet myself, did not bite my tongue
stayed in cardiology at RPA for a week during that time and even
passed out in the shower and my heart rate would go through the roof
stood up and was generally unwell all day, they couldn't find any
My heart specialist, then transferred me over to this neurologist, who
me on a waiting list for a week long EEG, to see if my 20minute long
(that I'd had previously) had missed anything.
I had gotten so bad, that by March I had to leave school, because I
there for a maximum of an hour, before I'd passed out again. My length
pass outs were increasing dramatically, it went from 10seconds, to
minutes, then ten minutes, fifteen, etc.
When it was time to have the week long EEG, it had gotten to the point
I couldn't walk ANYWHERE. If I was exposed to too much sunlight, I
pass out, or get a migraine. Sitting upright in the wheelchair for too
would cause me to faint. My blood pressure was permanently low. I
nothing, and go nowhere. I couldn't even walk myself to the bathroom
someone needing to come with me. All dignity was lost, and I would get
frustrated with the fact that I could do NOTHING on my own. Trying to
positive was difficult, but I would not let myself melt down and come
pieces with whatever this was. That would just make things so much
not only on me, but my family and loved ones. Having a shower,
was out of the question, as my blood pressure was permanently low at
point. So I would have a bath instead. One time I got so frustrated
anything and everything, and I just wanted to have a bath on my own
once, which before all this happened, I would be able to do freely
And of course, I passed out in the bath. That was so scary, one of the
terrifying moments of my life I think. I remember waking up, and my
Dad were pulling me out of the bath, I had no idea what was going on.
remember coughing up the water, I was so scared, and I remember mum's
she was terrified and crying I think. This was my life for over a
Hospital trips, ambulance rides, and then the hospital stays. The
thing was, we had no idea what was happening, and what was causing it.
days that I wasn't in hospital, I was at home, all day, every day.
the wheelchair was such a horrible experience for me, I hated it.
We would go through times when nothing would happen for a week or two,
would get so excited, thinking whatever it was that had been ruining
life, had finally left! When I then passed out, it was heartbreaking.
wanted so badly for everything to get back to normal.
It started getting scary; the amount of time I was unconscious for
increasing dramatically still. The longest time I have ever been
for was 40minutes straight. That was when the hospitals finally
taking things seriously, and doing tests, and more tests, which
my family and I, to discovering that it could be from having the
cervical cancer vaccinations.
If only people knew how much this has impacted not only on my life,
my family's life too. Having no idea what was going on, we all thought
this might be a permanent factor.
There were times in that period, where I thought I was going to die.
where I'd passed out on a main road, outside on my driveway, in the
the shopping centre, when I was asleep and when I was home alone
thought I was getting better). The impact it has had on my 8 year old
sister, is just heart breaking. I remember on her birthday, Mum and I
shopping for her birthday cake, and I passed out in the shops. I felt
horrible that I couldn't be there, and that Mum had to stay in
me. My sister wasn't left alone with me very often, but there has been
time where I passed out on the driveway, and she was the only one
was heartbreaking, that she had the weight of that on her shoulders.
I am infuriated that I had to postpone 18 months of my life, leave
not be able to drive, not be able to work, have no social life. I had
live with this EVERY DAY. There was no escape, I virtually could do
I am outraged that it has taken so long for my family and I to find
true cause of this, and I believe we deserve to be heard from. This
vaccination should never have been allowed into Australia without
I will not stop until we have been listened to, and action has been
and this vaccination is taken off the market completely.
Posted in Uncategorized | Leave a Comment ï¿½
Check this video from the USA with Lauren's experience after Gardasil
May 13, 2010 by Gertrude Green
Posted in Uncategorized | Leave a Comment ï¿½
March 26, 2010 by Gertrude Green
Naomi's Story (Melbourne, Australia)
The video of my story is
I was a happy healthy 25 year old girl working full-time and studying
complete a degree at Monash University. I went to get my gardasil
vaccination after being prompted by the strong government campaign. I
never asked whether I was pre disposed to auto immune conditions, had
compromised immune system or had any family history of such. If I had
been asked I would not have gotten the shot. After my first shot I had
really sore arm for weeks. I have never experienced that before with
vaccinations but at the time I thought it a small price to pay to
risk of cervical cancer.
I went in for my second shot and was never asked if I'd had any
since the first shot. A few weeks later I started having some problems
my legs. They felt stiff and walking wasn't as easy and it should be.
couldn't get comfortable at night and my hands and feet kept cramping.
also experiencing moving pains and was in quite a bit of discomfort.
started to get regular phsyio, massages and cupping therapy to
symptoms. I was also running (about 5kms a day) as I thought this may
loosen me up if my pain was postural. It never occurred to me that it
have something to do with my vaccination.
I went for my third gardasil shot and was never asked about my health
the initial two vaccinations. Within a week my knee became inflamed
started collapsing underneath me. My pains became debilitating and I
not sleep at night. All my joints were aching and even made a clicking
when I tried to go up or down stairs. My knees had a spastic feeling
tried to walk and my legs became very shaky. My knee seized up and
a bent position.
My doctor ordered some blood tests and they showed up a positive ANA
which is indicative of some kind of auto immune problem. I was in a
bit of a
mess and was put on 25 mg of prednisolone and referred to a
The rheumatologist told me that my problems were probably down to
I have never heard of anxiety giving anyone an inflamed knee before
was getting paid the big bucks. I refused to accept what she was
so she ordered an MRI.
Apparently steroids (like prednisolone) can take evidence from your
I had to stop taking them in the lead up to the MRI. And then my world
apart. I was so weak and shaky I could not stand. My body was tingling
numb and all of my bodily responses felt delayed. I could not feel
of hair when I picked them up. My feet were cramping and I was
things. I was going to the toilet all the time! My legs were jumping
giving me shocks, tremors and mini seizures. And then I got
from my legs. My legs did not feel like they fitted on my body. I
and it didn't feel like I was using my own legs.
My skin felt uncomfortable at times as though it was crawling and
properly. I was also feeling dizzy, tired and sick and could not
Dr's pen with my eyes. My eyes were jumping and playing up randomly. I
got sick with some kind of gastro bug and I kept vomiting until I had
to E.D. I have never been melodramatic when it comes to health and I
actually think I have a high pain threshold but tt one stage of that
did actually fear that I might be dying, though I was assured I would
My MRI showed up a lesion of demyelination on my brain indicative of
episode of multiple sclerosis and I was sent to see a neurologist.
explained to me that it was not a typical result and further evidence
be needed for any kind of diagnosis. I did an evoked visual response
and passed. The follow up MRI (6 months later) showed no progression
demyelination since steroid treatment and finishing Gardasil. I have
some meds for neurological conditions, pain and am slowly weaning off
steroids ï¿½ a milligram at a time. Every time I reduce my dosage it
around and gives me chronic fatigue. So far I have reduced my dosage
than half but I still have a long way to go.
Fourteen months after my last vaccination I still have chronic
syndrome, pain and some neurological difficulties. I have my fingers
that my steroid use will not result in diabetes or osteoperosis. I
still have a long hard fight ahead of me. I still have no formal
or medical explanation as to what has occurred. All I know is that
a lot of other girls with the exact same story as me and the only
thread we can find is Gardasil.
Posted in Uncategorized | 2 Comments ï¿½
See Judy Wilyman post in Background section and an Editorial in
and Gynecology that suggests all girls and women receiving Gardasil
be put on contraception for the whole period of the 3 shots (+ 30 days
so that babies born with disabilities can be avoided. This sheds yet
light on the Gardasil saga: too dangerous to give to any girl/woman!!
put 11 year old girls on hormonal contraceptives is surely not a good
March 14, 2010 by Gertrude Green
Posted in Uncategorized | 2 Comments ï¿½
August 31, 2009 by Gertrude Green
Jessica's Story (USA ) - as told by her mother Malinda
My daughter, Jessica, had the Gardasil Vaccination between August 2006
April 2007. She had her first one before she left for college.
thereafter, she started calling us and telling us that she was losing
of hair. Next came the stomach aches. Soon, she had such bad
aches. Soon came issues with constipation. We had gone to a few
that tried her on Irritable Bowel Syndrome medicine and probiotics
stomach acid. Nothing seemed to make a difference.
Over the next two years her symptoms progressively got worse. Also, in
meantime we went from one doctor to the next. We even went to Mayo
in Rochester, MN. Their final diagnosis was Chronic Fatigue Syndrome
Fibromyalgia. Why? What caused this to a girl that used to be
normal, healthy, athletic and super bright?
Her symptoms have progressed to extreme fatigue, swollen lymph
inflammation, achy muscles, sores in her nose, bladder infections,
infections, abnormal pap smear, insomnia, heart palpitations, foggy
concentration, headaches, extreme stomach bloating and stomach
horrendous menstrual cycles, and an overall ill feeling. Never
feels good. Some days are worse than others. Jessica can get a good
sleep and then feel like she has a hangover in the morning.
Some of the issues I am concerned about with her is did Gardasil push
body into menopause? Will Gardasil cause her cervical cancer? Will
Gardasil cause her to have infertility issues? Did Gardasil push her
into an auto immune disorder which causes this overall general ill
We are currently using food supplements and vitamins to try to make
better. It seems like she may have a better day and then boom, the
is not soo good.
Posted in Uncategorized | 5 Comments ï¿½
August 31, 2009 by Gertrude Green
My condition got worse after the second and especially the third
(2008 July). As nobody informed me of the adverse side effects, I
unfortunately kept having the last shot. Simultaneously, I also had a
gynaecological problem which ended up being a chronic inflammation
chronic pain condition.
My first symptoms were numbness, pins and needles in the extremities,
nausea, extreme fatigue, dizziness, confusion, depression, seizures,
trembling, metallic taste in the mouth. I also had a major Candida
which is still present. It is unfortunately getting worse and worse,
although I'm on a diet and I tried taking some antifungals, nothings
working, my immune system is falling apart. I am currently diagnosed
Chronic Fatigue Syndrome, Fibromyalgia, Vulvodynia, and my recent
results show that I am also developing an autoimmune disease, in
chronic inflammations in my body.
For treatment and management, I'm having a rest and avoiding food
to speed my recovery. I have visited at least 10 doctors and none
that the vaccination was the cause of this. This broke my trust and
vulnerable as I don't know where to seek help from. Even though I'm
convincing myself that maybe there is nothing to do but wait, I am
developing new symptoms and not knowing how to deal with managing and
treating them. I recently developed an inflammation in the back part
head with severe pain and burning sensation, this is a new symptom
again, confusing. This whole experience is very difficult to deal
emotionally and physically. I do believe that things would be easier
less damage if medical professionals were informed properly and
what they are doing. I really feel like a victim and still hoping to
solution and help.
Posted in Uncategorized | 1 Comment ï¿½
Check background information for critical Editorial by Charlotte Haugh
the Journal of the American Medical Association stating what a lot of
critics have said: HPV vaccination has a lot of adverse effects and
efficacy is unproven
August 19, 2009 by Gertrude Green
Posted in Uncategorized | 1 Comment ï¿½
Megan's Story (USA) - as told by her mother Karen
July 20, 2009 by Gertrude Green
I'm writing this about my daughter so that anyone who may read this
know what happened to my beautiful daughter Megan.
Last November 15th 2008 my daughter Megan had made plans with the
paint the outside of the home. We live in New Mexico, USA and it can
be pretty warm in late fall.
She had called that morning and asked what time I wanted her over and
told her that she could come at any time. It was early in the morning,
a little cool and I had told her she could come and we would get
after it had warmed a bit. She said, "OK Mom I'm going to get in the
and then I'll be over."
Megan lived about 6 miles away. She was going to college and had her
place. She was 20 and would be 21 in a week and a half, Thanksgiving
The family started painting, we broke for lunch, no Megan yet. We
up lunch and went back out to continue painting. I thought about her
showing up yet but I figured she changed her plans, forgot to call, or
boyfriend and she decided to go do something. Not a worry. Kids,
I got the call, come quick. I did. I got there to see emergency
everywhere so I just stopped my car and ran. I saw in her room the
working on her. It was too late she had been in the shower for about
hours. My beautiful daughter was gone.
The pathologist told us that there was no cause of death to be found.
asked about the Gardasil as we knew Megan did not drink, do drugs or
The pathologist said that they could not find a cause to her death. We
have no answers and still continue to search. They did say however
lungs were filled with foamy fluid. Many of the parents who have lost
daughters and who have had the Gardasil vaccine have had this same
diagnosis. Not that this is the cause of death. Could it be a seizure?
it be some kind of breakdown of their lungs?
At first we thought she had fallen in the shower and hit her head and
drowned but that was not the case. The showerhead was found turned
the wall and she had gotten herself on her knees and laid her head on
edge of the tube and passed away, the water was not in her face.
Megan had some of the symptoms that other young women who passed away
experienced. She was extremely fatigued. We thought it was just her
etc. She had had a rash on her face. Migraine headaches. Megan also
severe pains in her stomach. She had these pains the night before she
away. She also had told me she felt like she was getting the flu.
We all need answers: why are these young women having these symptoms
the Gardasil vaccine? The symptoms are all similar but these girls are
told that the medical field does not know what is happening and they
tell them it is not the vaccine that has caused their injuries. Why is
that no one is helping to find out what the problem is? It makes us
wonder what the Government is up to when they will not help in solving
problem and yet more and more girls are coming down with these same
who have had the Gardasil vaccine. Not just here in the US but there
reports of these same symptoms worldwide.
If you are a parent or a young woman reading this and are thinking
having the Gardasil vaccine, please research it yourself before you
Posted in Uncategorized | 1 Comment ï¿½
Marian's Story (Australia)
July 20, 2009 by Gertrude Green
Most of my adult life I have lived with the knowledge that I am at
risk of cervical cancer. As a DES Daughter I have a lifetime risk of a
clear-cell cancer of the cervix/vagina. This cancer, causally linked
utero exposure to DES, is aggressive, symptomless and the usual Pap
will not pick it up. I have to have an annual "DES examination" that
involves colposcopy. (For more on the DES story: www.desaction.org.au
In addition, also because of my DES exposure, I have a 4-fold increase
of squamous-cell cancer of the cervix - the cervical cancer the Pap
designed to detect.
Since first finding out I am a DES Daughter (nearly 30 years ago) I
learnt to live with this risk, to put it into perspective and get on
life. Part of this process involved becoming informed about cervical
by reading medical journal updates. More important, however, was the
of experiences with other DES daughters. In this way over the years
of DES Action have built up a unique knowledge base and "expertise"
cervical cancer, from the consumer perspective.
So when there was news of a "cervical cancer "vaccine being developed,
naturally were very interested and read up on it. However, the more we
the less sense it made. It wasn't a "cervical cancer" vaccine but a
part-vaccine for HPV. The unanimous consensus we came to was "Why
[As outlined in 'Gardasil: All cost and no benefit.']
We were very concerned about the "hard sell" the pharmaceutical
using to put pressure on the Government to have Gardasil listed on
National Immunisation Program.
But our greatest concern, based on our DES experience, was the lack
evidence of long term safety of the drug. Could Gardasil, like DES, be
time-bomb with serious, unforeseen adverse outcomes emerging months,
or even decades after the initial injections?
Here is an extract from DES Action's newsletter DESPATCH, March 2007:
Gardasil: Hype & Hard Sell
by Marian Vickers
Last November saw the most extraordinary example of manipulating the
for commercial gain when CSL, which shares Australian marketing rights
Gardasil with Merck, orchestrated the listing of this new cervical
vaccine on the National Immunisation Program.
CSL's initial proposal was rejected by the Pharmaceutical Benefits
Committee (PBAC) because of "uncertainty about the duration of effect
All hell broke loose and the first casualty was informed public
followed was emotive, sensational lobbying and political opportunism,
culminating in political interference from the highest level when the
Minister, John Howard, intervened and effectively vetoed the PBAC
This "decision-making by media" has compromised the PBAC and
Australia's drugs safety system.1
The lack of informed public debate has made decision making difficult
personal level. Many parents will be wondering whether to recommend
vaccine to their daughters. Given that the vaccine is targeted at
teenage girls, there is an issue of informed consent. Next month the
immunisation program commences and consent forms will be sent home.
parents meant to make an informed decision on behalf of their
Just how effective and safe is this vaccine?
Because of the DES experience, I'm most interested in looking at drug
safety. A concerning aspect of the debate on Gardasil is the lack of
information on its safety, particularly long-term safety.
In the media, any mention of 'safety' is in fact talking about
i.e. will the vaccine work for a lifetime, or is a booster necessary?
Worryingly, in the government "fact sheet" for health providers, there
only 2 sentences relating to 'safety':
"Gardasil is generally well tolerated, with a small increase in
injection site reactions and fever compared to aluminium containing
(injection site reactions 83% vs 73%, fever 13% vs 11%). Very few
adverse reactions were reported in clinical trials." 2
There is no information on how long the clinical trials went for, and
whether any large-scale trials were conducted on 12-13 year old
Given that there is going to be wide-scale immunisation of thousands
young girls starting next month, the health authorities better be very
there will be no unforeseen, unexpected side effects in the future. It
be truly tragic if the young girls receiving the vaccine faced an
risk of, for example, infertility or autoimmune disease in 5, 10 or 20
Hopefully animal modelling studies have been done to rule out this
1. Gina McColl: 'Health care's sticking point', The Sunday Age, News
12, February 25, 2007
2. Fact Sheet 'Human papillomavirus vaccines for Australians:
for GPs and immunisation providers', National Centre for Immunisation
Research and Surveillance of Vaccine Preventable Diseases, page 4,
From DESPATCH #54, March 2007, page 1
At the time of writing this my 2 daughters were aged in their early
therefore not part of this school vaccination program. I might have
mentioned in passing that I thought they didn't need Gardasil, but I
make a big deal of it.
What I didn't realise was that the "hard sell" had been extended and
directly targeting all young women. During 2007 every time my
to the doctor for some other reason, they were urged (one could almost
harassed) to have their Gardasil shots. They each received letters
various medical centres they had attended in recent years. These
were sent out to all "eligible" young women urging them to have
while it was free. [I only found this out later as my daughters were
living at home but sharing a unit a couple of suburbs away.]
My younger daughter, aged 24 years, had the first 2 shots of Gardasil
late 2007. In March-April 2008 she had to take a number of sick days
work due to extreme tiredness and lethargy. She had a test for
fever (it was negative) and upped her intake of vitamins. Luckily she
get around to having her 3rd shot of Gardasil and, after seeing what
happened to her sister, she gives a serve to any doctor who suggests
My elder daughter Zoe was fit and healthy in May 2008 when she passed
thorough medical examination. Two months later - and one month after
receiving the 3rd Gardasil injection - she was a housebound invalid:
couldn't walk, drive or work.
I bought her a "health diary" and she recorded her symptoms, what she
and what medication she was on. Looking back over this diary I don't
how we got through those following weeks. I'm just so impressed with
strength of character.
Her symptoms started off with a terrible rash (urticaria) which she
every day for 7 months. Her face would swell up (angioedma) so she
like a boxer who had lost a fight. Her tongue had strange bald patches
it. She was having weekly blood tests. Initially these were normal but
her CRP levels (an indicator of inflammatory disease) were elevated
getting higher by the week. Her wrists and hands were swollen like
rheumatoid arthritis. They ached and she had trouble holding things.
knees and ankles were swollen and aching. The soles of her feet were
swollen she couldn't walk and could only hobble short distances. There
inflammation of connective tissue and more tests were ordered looking
Lupus. By the end of July she started getting indigestion, gastric
severe abdominal pain and gastric reflux. She had 3 episodes where
throat swelled up and she had trouble breathing. In early September,
being examined by a Rheumatologist, a suspected heart murmur was
and she was sent for more tests. When she'd had the medical 4 months
previously in May there was no heart murmur present.
Any one of these symptoms is painful and difficult to deal with. To
them occur suddenly, all at once, and with increasing severity was
distressing and very frightening -particularly when the treatment
doses of antihistamines) wasn't working.
During this time Zoe's younger sister was put under enormous stress as
had the responsibility of looking after Zoe on a day to day basis.
A breakthrough, in terms of understanding what was going on, came
August when we were given information on Ketotifen, a mast cell
Apparently people with chronic urticaria and angioedma do not suffer
specific allergies, but rather an unstable mast cell system. According
the fact sheet, the unstable mast cells leak histamine, prostaglandins
leucotrienes, which result in other associated symptoms. For example,
the release of these chemicals, patients also suffer from headaches,
tiredness, lethargy, irritability and difficulty in concentration. It
also affect the gastro-intestinal tract causing cramping, bloating,
indigestion, regurgitation, flatulence, intermittent diarrhoea and
constipation. Many patients suffer from joint pains and muscle pain.
symptoms are due to the inflammatory properties of leaked histamines,
prostaglandins and leucotrienes.
As the Clinical Immunologist we saw in October explained, unstable
cells underlie autoimmune responses. So finally we had a diagnosis of
condition that explained the symptoms - chronic uritcaria/angioedma,
autoimmune response due to an unstable mast cell system.
Having a diagnosis was only the beginning of the journey. Doing a rush
on reading up on the immune system and autoimmune disease left my
Quite by chance the ABC TV program 'Catalyst' ran a special on 'The
System', 7 August 2008. The gist of the program was that our immune
are fantastically complex, responsive and adaptive. Science is only
starting to unravel the wonders and complexity of the immune system.
Even more complex is the autoimmune response: this is when the body's
system defences turn back on itself and start attacking healthy cells
tissues. Autoimmune diseases include asthma, rheumatoid arthritis,
bowel, motor neurone disease, multiple sclerosis. What triggers this
autoimmune response is unknown. Why some people get it and others
That's why I get so angry when I think about Gardasil. Here we have a
vaccine which deliberately meddles with the individual's immune
is a new type of vaccine never used before. It uses new technology -
recombinant DNA technology (which is like cloning) - to trick the
system and artificially rev it up. No thought of triggering an
response, all they look for are injection site redness and fever
hours. How dare they! Talk about irresponsible cowboys. Boys with
I think the diverse and varied adverse reactions to Gardasil may be
responses. Our immune systems have evolved over eons. We are
primitive survival reactions. Everyone has heard of the "fight or
reaction. However it appears there may be a 3rd primitive programmed
reaction: "freeze". When studying humans under extreme duress,
have found that people often become lethargic, they freeze up, shut
becoming limp and still. This may be a primitive survival response -
dead may discourage a predator from attacking. [Refer to 'The
Who Survives Disasters - And Why' (2008) by Amanda Ripley]
So maybe the many reports of girls fainting or experiencing temporary
paralysis can be explained as an immune response - a response to the
on the immune system by Gardasil.
It's time to start asking questions of the drug manufacturers and the
safety authorities. Specifically, exactly what studies were done prior
its release to show Gardasil is safe, that it doesn't trigger
immune/autoimmune responses? Where is the evidence of its safety?
Marian Vickers, Convenor DES Action Australia
From: dr_jeff on 17 May 2010 23:15
Yet, no evidence is given that this has anything to do with the vaccine.
It is all just coincidence.
Get a clue Jan.
<Garbage and crossposting deleted>
From: Peter B. on 18 May 2010 19:30
"Jan Drew" <jdrew63929(a)aol.com> wrote in message
Keep on moving folks, show's over. Deleted nonsense of a deteriorating mind.
Move along now...............as the white jackets carefully bundle the old
lady for long term care.